Concerns and Strategies

Infancy & Early Childhood: Ages 0-5

Problems and Concerns

  • Sleep disturbances; poor sleep/wake cycle
  • Poor sucking responses
  • Failure to thrive
  • Delays in walking and talking
  • Delayed toilet training
  • Difficulty following directions
  • Temper tantrums and disobedience
  • Distractibility and hyperactivity

Recommendations

  • Early identification
  • Intervention with birth and/or foster/adoptive parents
  • Education of parents regarding physical and psychosocial needs of an infant or child affected by FASD
  • Careful monitoring of physical development and health
  • Safe, stable and structured home
  • Assignment of a case manager for coordination of services and support to parents
  • Placement of child in preschool
  • Respite care for caretakers

Latency Period: Ages 6-11

Problems and Concerns

  • Easily influenced and difficulty predicting and/or understanding consequences
  • Give and appearance of capability without actual abilities
  • Difficulty separating fact from fantasy
  • Temper tantrums, lying, stealing, disobedience and defiance of authority
  • Delayed physical and cognitive development
  • Poor comprehension of social rules and expectations

Recommendations

  • Safe, stable and structured home or residential placement
  • Careful and continued monitoring of health issues and existing problems
  • Appropriate educational and daily living skills placement
  • Help caretakers establish realistic expectations and goals
  • Caretakers support group
  • Psychological, educational and adaptive evaluations on a regular basis
  • Use of clear, concrete and immediate consequences for behavior
  • Respite care for caretakers
  • Case manager role expands to include liaison between parents, school, health care providers and social service agents.

Adolescence: Ages 12-17

Problems and Concerns

  • Lying, stealing and passivity in responding to requests
  • Faulty logic
  • Egocentric; has difficulty comprehending and/or responding appropriately to other people’s feelings, needs and desires
  • Low motivation
  • Low Self Esteem
  • Academic ceiling which is usually around grade 4 for reading and grade 3 for Spelling and Math
  • Depression
  • Pregnancy or fathering a child
  • Loss of residential placement

Recommendations

  • Education of caretakers and patients regarding sexual development, birth control options and protection from sexually transmitted diseases
  • Planning and implementation of adult residential and vocational training and placement
  • Appropriate mental health interventions as needed
  • Respite care for caretakers
  • Caretakers support group
  • Safe, stable and structured home or residential placement
  • Shifting of focus from academic skills to daily living and vocational skills
  • Careful monitoring of social activities and structuring of leisure time
  • Working towards increased independence by teaching to make healthy choices (taught at the child’s level)

Adulthood: Ages 18 and beyond

Problems and Concerns

  • Residential placement
  • Economic support and protection
  • Job training and placement
  • Depression and suicidal ideation
  • Pregnancy or fathering of a child
  • Social and sexual exploitation, or in appropriate behavior
  • Increased expectations of the person affected by FASD by other people
  • Increased dissatisfaction towards the person affected by FASD by others
  • Withdrawal and isolation
  • Unpredictable behavior

Recommendations

  • Guardianship for funds
  • Specialized residential and/or subsidized living
  • Specialized vocational training and job placements
  • Medical coupons
  • Acceptance of the person’s “world”
  • Acknowledgment of the person‘s skills and limitations
  • Advocates to ensure the above occurs